This line of thinking diminishes the real struggles autistic people face. Not everyone is autistic, and it's not just a quirky set of traits. I do believe society could be better arranged for people who for whatever reason don't conform to the overculture norms, so we could talk about disability along the axis of how society privileges or disadvantages certain individuals.
The concern is that autism as a rigorous category may be useless, but that doesn't mean that autistic people are suddenly neurotypical -- a term that is more politically than scientifically oriented. People who are not autistic broadly are allistic, to be precise with language. They may be neurodivergent in other ways.
I'm reminded of an anecdote I heard once from a psych(ologist/iatrist?) that goes something like: if you think you hear voices in your head, but the voices tell you to go to bed on time and drink plenty of water, you don't need a diagnosis/treatment.
The point is that a lot of things, when it comes to humans and their brains, is judged first based as to whether or not it negatively affects your life. Think of how we define addiction.
General doesn’t mean it applies to literally everyone. If autism turns out to be a specific condition that is e.g. the result of abnormal neuron pruning during early development, it could have a wide array of symptoms, but that understanding may someday lead to genetic treatments for sever cases, better early childhood interventions, etc.
I do think that the current ASD umbrella as written in the DSM is so broad as to seem nearly meaningless when take in isolation. It’s not meant to be in isolation however, it’s defined first and foremost as a disorder, so the symptoms need to cross some threshold of tolerable. It’s also associated with a growing body of research as to how nervous system development can cause related clusters of symptoms.
Is autism as we understand it scientifically accurate? Probably about as much as anything hovering in the intersection of social sciences and medicine. It does have some predictive power. If you meet the diagnostic criteria for autism you are likely to have certain comorbidities for example. Having certain autistic traits are good predictors of certain outcomes later in life. And we do have better therapies especially for young people than we have in the past.
The fact that people can have non-overlapping clusters of traits and still be autistic does seem problematic. It may not be the right model. Just my $.02, I’m not the autism researcher in this convo, but I am autistic :)
> But different autistic people struggle with different things, in different ways.
Different asthmatic people struggle with different things, in different ways too, but it's useful to have a general diagnosis umbrella to cover those who have asthma even though symptoms and effective treatments may vary.
Work is ongoing to get better defined categories for autistic people, but for now at least we've got a category for people that match a broad set of traits/symptoms/challenges to work from.
The problem is that the set of problems is very broadly defined, changes over time, varies from person to person, it's often impossible to obiectively test.
Can't it be that a neurotypical person is bothered by some autistic triggers? Would that make them neurodivergent? How many of those triggers do you need to have to be under that umbrella? 1? 5? 20?
It is indeed called a spectrum, and I think it gets so fuzzy at the edges that the only way to define where it starts or ends is purely arbitrarly chosen.
It's a bimodal distribution. There are people with few of these traits lightly, and people with many or with a few severe ones. Not so many in between. This already makes it an interesting line to draw.
No so different things, and not so different ways. The "if you met one, you met one" is overplayed. Yeah, they have different interests and might have different comorbidities, doesn't mean they don't just have different core issues that are merely expressed differently (e.g. hates jeans vs hates wool sweaters or hates noises, but underlying both is sensory sensitivity).
The fact that they don't is why diagnostic tests exist and work.
That's a good example: they hate certain things, and are ok with others.
Depending on what you "hate" your life and disability can vastly drastically. Be it eye contact, clothing, certain foods, or the inability to change your routine or environment at all, or to even leave the house alone.
>The concern is that autism as a rigorous category may be useless, but that doesn't mean that autistic people are suddenly neurotypical
IDK. I'm diagnosed as autistic, but I've become a bit less attached to that label in recent years. Like, I do struggle with eye contact, excessive noise, and social situations. I'm not going to say that I'm just a normal guy, but I do think that there's a wide spectrum here that encompasses everybody. I don't buy the idea that autism is some special category of people that are totally unlike neurotypicals. Instead, it's just one side of the spectrum, with neurotypicals on the other end, and an ambiguous group in the middle[0]. I think that once society becomes more accepting of neurodiversity, we're going to stop getting so hung up on labels like "autistic" and "neurotypical" and accept that there's a lot of nuance in the human condition.
[0] In reality, this spectrum would be multi-dimensional, but I'm choosing to describe it as a 1D line for illustrative purposes.
When I first considered my condition, I was looking around and was trying to mentally label people as neurotypical/neurodivergent.
After a few years, I started labeling more and more people as neurodivergent, because I could notice more subtle hints. Now, I instead just try to figure out how far on the spectrum everyone is, to know how the relationship dynamic will be like.
But that's the thing, sight and blind can be easily defined.
"Autism" can't, most of the people live undiagnosed, many mask the symptoms unknowingly, specialists can't even tell exactly if someone is autistic or not, many people are misdiagnosed, or diagnosed as neurotypical by some specialists and neurodivergent by others.
I don't think the ratio is that far towards neurotypicals as it was previously believed. I think that, as most things in life, it's a gaussian distribution.
> Autistic people pretty reliably score high on a set of diagnostics test
Any sources? In my experience, most people that I know are on the limit with their diagnostic, and the majority discovered it late in life (30+, so a lot of masking is involved).
In the end, maybe we are just all unique individuals with our character sliders set in various forms.